My daughters Story

My 4 year old daughter was diagnosed with strep throat on June 23rd 2009 she was put on Amnicef for 10days. She did the 10 days and was much better. 3 days after she finished the amnicef she came down with 103 fevers. I took her to the dr on July 6th and she tested positive for strep again. She was put on Augmentin. Well on July 8th I took her back to the dr because her neck started to swell. She was given a shot of Rocephin in each leg. I thought she would be better by morning. Well over night she got worse. I took her back to the dr on July 9th and she had a bad rash, her face, hands, feet were swelling. The dr took one look at her and said "I think she has Kawasaki's disease" I had never even heard of it before. She was admitted to the hospital that day. The infectious disese dr came in and said he thought it was allergic reaction to one of the medicines. But at this point she was running 104 fevers. I was not happy with his answers. He put her on high doses of benedryl and ordered lots of blood work, chest x-rays, and an eco cardigram. The next day (friday) she wasnt doing any better, she was getting worse. The fevers were pushing almost 105 and her lips had swollen so much they cracked and were bleeding. We couldnt touch her because it hurt her so much just to touch her. That day a NEW infectious disease dr came in and said she had Kawasaki's disease and they wanted to give her the IVIG. Well at 9pm she started the first dose of the IVIG. 30 minutes after they started it she spiked a fever of 105 and was shaking and all she could say was "freezing" over and over. We got some tylenol in her and she went to sleep. She was on 300mg of asprin every 6 hours. Well on Saturday the fevers started to go down but hung around 101. On Monday the infectious disease doctor decided she needed another dose of the IVIG, the swelling hadnt went down. So at 1pm they started the 2nd dose. They also said if she didnt start to eat by morning they were going to put a feeding tube down her nose. She hadnt ate in 8 days at this point, and she was loosing weight. The next morning Tuesday morning she was hungry, she ate pancakes and sausage. We were so happy. She was drinking more also. She was sitting up in the bed and playing with playdoh. She was still in alot of pain though. She was still on asprin, zithromax, zantac, and benedryl. She was diagnosed with mycroplasma pnemounia thats what the zithromaz was for. On wednesday she was doing ALOT better. Eating and drinking and I actually got to hold her. I was happy. She was smilling and laughing. She still couldnt walk yet though. They released us that night from the hospital because she had been fever free for over 48 hours at that point.
She lost a total of 9 pounds and for a 4 year old thats alot. She goes to the dr once a week right now, and she cant go out in public because she can NOT get sick. She has blood work done once a week and is scheduled for an eco cardigram every 2 weeks. She will see the infectious disease dr next week also. She started to walk again finally, she still has some pain. Her hands and feet are peeling like crazy. Her toe nails are actually peeling off. She says it doesnt hurt though. She takes a baby asprin every day now. I dont know for how long yet. I am just happy that her pain level is lower.